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Governance

Thank you for taking the time to consider registering with HealthWise Wales.

The pages within this "About" section contain all of the essential information that you need before you register.

On this page, we answer questions about who will is responsible for doing and overseeing the work.

Who is doing the study?

HealthWise Wales is a partnership between the public and the scientific community in Wales. It is funded by Health and Care Research Wales which has responsibility for research in the NHS in Wales.

The day to day running of the study is done by a team of researchers based in Cardiff and Swansea Universities. The study is overseen by a Public Involvement Member and a Scientific Advisory Group.

Dr Sunil Dolwani of Cardiff University is the Scientific Lead for the project.

Public involvement and engagement with HealthWise Wales

To help ensure that HealthWise Wales is being managed in the public's interest and delivered for the benefit of the people of Wales HealthWise Wales has strong patient and public involvement and engagement(PPI&E). This is reflected in the HWW PPI policy (based on the National Standards for Public Involvement) and the HWW Implementation Plan which has been co-produced with our PPI&E Team member Jeffery Horton. Our implementation plan is designed to deliver a framework for our PPI activities and details the ongoing day to day involvement our public contributors provide to the project.

For more information on Public Involvement in research, please visit the Health and Care Research Wales website.

The HealthWise Wales Policy for Public Involvement is as follows:

  • HealthWise Wales (HWW) aims to create a partnership between researchers and the public as equal contributors.
  • HWW was conceived and will be developed with the public, for the public. The public are involved in all aspects of the project including governance, management and promotion.
  • Public Involvement is embedded throughout the project.
  • All public facing documents and events will have public involvement before they become public facing.
  • Members of the public are involved in planning and reviewing public facing materials and events, scrutinising research proposals, developing public involvement policy and plans and in the monitoring and evaluation of public involvement.
  • Members of the public contributing to the project have clearly defined roles and participate in capturing and evaluating the impact of their involvement.
  • Members of the public will be offered support and training if required, to ensure they are able to make an effective contribution.
  • All members of the public working in partnership with HWW will be encouraged to join the Public Involvement Community.
  • All studies wishing to use HWW data or the research platform need to demonstrate how they have and will involve the public in their study.
  • All HWW research team members will be trained on facilitating public involvement.
  • An implementation plan has been developed to ensure the policy is translated into practice.
  • A review and evaluation of all public involvement activities is undertaken annually.
  • The public involvement policy has been developed with the public. It is the responsibility of all those involved with HWW to adhere to the policy. The policy will be reviewed as part of the overall review of public involvement on an annual basis.

Who are the HealthWise Wales Executive Team?

The Executive Management Group (EMG) has responsibility for ensuring that the delivery of HWW meets appropriate standards and that arrangements are in place to ensure appropriate conduct and reporting, in accordance with the Research Governance Framework for Health and Social Care in Wales.

The Director and Associate Directors will meet regularly, with responsibility for:

  • Regular review of key performance indicators
  • Update of HWW strategic direction and responsiveness to research initiatives and opportunities across the UK and beyond.
  • Ensure consultation as appropriate with PPI partners, HCRW and its research infrastructure leads, NHS, Third Sector and Industry collaborators.
  • Assess and approve requests for access to HealthWise Wales data
  • Ensure public and patient representation regarding on the appropriateness of data access requests
  • Assess and approve applications to make contact with individuals regarding specific study opportunities
  • Ensure that all HWW activities including the proposed sample collections are ethically approved, conducted within research governance regulations, compliant with the General Data Protection Regulation and the Human Tissues Act 2004 in accordance with the processes set out by Cardiff University Biobank.

The Executive Management Group

  • Dr Sunil Dolwani - Principal Investigator and Director, Cardiff University
  • Professor Shantini Paranjothy - Associate Director, Aberdeen University
  • Professor David Ford - Associate Director, SAIL lead, Swansea University
  • Professor Mike Robling - Associate Director, CTR lead, Cardiff University
  • Dr Pauline Ashfield-Watt - Research Manager, Cardiff University
  • Dr Jeffery Horton - Lead Lay Patient and Public Involvement Representative

Who are the Scientific Steering Advisory Group?

The HealthWise Wales Scientific Steering Advisory Group provide advice and scrutiny for the development and delivery of the HealthWise Wales initiative. They are made up of representatives from HealthWise Wales and Health and Care Research Wales, along with academic and lay representatives.

The Scientific Steering Advisory Group:

  • Provide expert advice on the development and delivery of the HealthWise Wales proposal
  • Provide scrutiny on the delivery plan for the HealthWise Wales
  • Review regular reports on the progress of the initiative from the Executive Group
  • Monitor participation rates for the initiative and advise on strategies to ensure that it remains on target
  • Advise on recruitment strategies for the initiative
  • Review outputs from specific working groups set up to support the further development of the initiative, and provide advice as to the appropriate stage for delivery
  • Approve any amendments to the initiative proposal
  • Act as the link with the National Research Centre and Units and Research Infrastructure Groups to ensure the utility of HealthWise Wales is maximised in supporting the work programmes of these groups.

Scientific Steering Advisory Group list of members:

Name Organisation Representing
Ian Jones Cardiff University NCMH
Sunil Dolwani Cardiff / Aberdeen University HealthWise Wales
Adrian Edwards Cardiff University PRIME
Alison Orrell Bangor University Bangor University
Charles Musselwhite Swansea University Centre for Innovative Ageing
Pauline Ashfield-Watt Cardiff University HealthWise Wales
Chris Roberts Welsh Government Welsh Government
David Ford Swansea University SAIL
Donald Fraser Cardiff University Kidney Research Unit
Greg Fegan Swansea University Swansea Trials Unit
James Colley Welsh Government Welsh Government
John Chester Cardiff University Wales Cancer Research Centre
Kerry Hood Cardiff University Clinical Trials Unit
Liam Gray Cardiff University Brain Research Unit
Mark Atkinson Swansea University SAIL
Paul Brocklehurst Bangor University NWORTH
Ronan Lyons Swansea University National Centre for Population Health and Wellbeing Research
Steve Bain Swansea University Diabetes Research Unit

Ethical approval

A favourable ethical review for the study was achieved from Multicentre Research Ethics Committee (MREC) for Wales in Feb 2015 (15_WA_0076). The revised and updated protocol was submitted and approved for continuation 2020 - 2025 (20_WA_0064, April 2020).

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Due to COVID-19, our telephone lines are currently closed. For all enquiries, please email healthwisewales@cardiff.ac.uk

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